Epilepsy Association of the Big Bend, Inc.
1215 Lee Ave, Ste M4
Tallahassee FL 32303
Contact Information
Address 1215 Lee Ave, Ste M4
Tallahassee, FL 32303
Telephone (850) 222-1777
Fax 850 222-7440
E-mail mandy@eabb.org
Web and Social Media
Donate Directly to this Organization http://www.eabb.org
Donate to this Orgs Endowment Fund at Community Foundation http://www.cfnf.org/index.cfm?p=ways-to-give
At A Glance
Former Names
Epilepsy Foundation of the Big Bend
Organization's type of tax exempt status Public Supported Charity
EIN Number 59-2935276
Year of Incorporation 1989
Financial Summary
 
 
Projected Revenue $250,950.00
Projected Expenses $250,950.00
Mission Statement
TO MEET THE NEEDS OF INDIVIDUALS WHOSE LIVES ARE AFFECTED BY EPILEPSY.
Needs Statement

EABB serves in the critical role of safety net provider through the financing of specialized treatment for epilepsy for individuals without health insurance, and/or the financial means needed to properly treat their seizure disorder. We provide a program that improves access to health care services for citizens living with epilepsy.

EABB Client Needs:
1. 98% of clients require financial assistance to meet the cost of their medical care;
2. 80% of clients require 100% financial assistance to meet the cost of their medical care;
3. 72% of clients can not drive and thus require transportation assistance to meet their daily needs;
4. 95% of clients require financial assistance to purchase their anti-epileptic medications;
5. 56% of clients require one anti-epileptic medicine to control their seizure disorder;

Costs vary based on each particular diagnosis. Specifically, the frequency of tests and labs required for monitoring the disorder, the frequency of doctor office visits needed and the types and amounts of medications required to assist with seizure control vary from individual to individual.

Impact Statement

EABB assists more than 370 individuals with epilepsy by providing diagnosis with board certified neurologists, ongoing medical treatment, anti-epileptic medication assistance, case management and prevention, and education services. Our target population consists of primarily the indigent, underinsured, and uninsured. Currently, 78% of all EABB clients have incomes at or less than 100% of the federal poverty guidelines.

Last year’s program accomplishments:
1. 100% of qualified clients received initial consultations and necessary diagnostic procedures.
2. 100% of clients and/or non-clients received at least one emergency medication prescription.
3. 97% of clients reported improved seizure control.
4. 88.5% of clients reported zero visits to the emergency room.
5. 95% of clients reported that their overall quality of life had improved.

This year’s program goals:
1. Provide comprehensive treatment and diagnostic procedures for qualifying individuals with epilepsy;
2. Provide a comprehensive epilepsy prevention and education program;
3. Provide seizure first aid training to clients and to targeted community groups

Community Impact:

According to Florida’s Agency for Health Care Administration, an average emergency room visit for a seizure costs $4,035. In the last year, client emergency room visits decreased by 70%. This represents a savings to the community of $294,555. Through a reduction in emergency room visits, improved seizure control, and an overall improvement in quality of life, the impact on our community is clear.

Background Statement

EABB was incorporated as Epilepsy Foundation of the Big Bend in October 1988. In 1989 the agency applied for the Florida Epilepsy Service Providers contract for 14 counties in the Big Bend area. In 1990 the agency added both client services and prevention/education coordinator positions. In 1992 we officially became the Epilepsy Association of the Big Bend, Inc.

Service Categories
Epilepsy
Epilepsy
Epilepsy
Areas of Service
Areas Served
Areas
Other
EABB serves 14 counties in the Big Bend area of North Florida:
Calhoun, Franklin, Gadsden, Jefferson, Leon, Liberty, Madison, Taylor, Wakulla, Bay, Gulf, Holmes, Jackson and Washington Counties.
CEO Statement/Executive Director Statement

In our community, the Epilepsy Association of the Big Bend is the last stop for individuals diagnosed with epilepsy who do not have health insurance or cannot afford to pay for their medical services at market or retail rates. We provide a program that improves access to health care services for citizens living with epilepsy.

EABB is the unique and unduplicated non-profit service provider for this disorder. If we do not fill this niche, the overall consequences to our community are clear: increased expenditures of community dollars to meet this documented need, and increased suffering and potential marginalization of numerous people who suffer from this chronic disorder. Simply put, the “alternative” to our services is a trip to the local emergency room and/or hospitalization at an extremely higher cost to all taxpayers.

Medical services, educational efforts, and collaborative efforts with local medical providers and social agencies result in significant savings to the community. This is due to reduced visits to the emergency room and through an overall improved quality of life for those diagnosed with epilepsy.

Ultimately, the best indicator of our program’s success comes from those directly served:

“Your program is excellent!! I do not know where I would be without it. I feel truly blessed to be part of the program.”

“Epilepsy Association has provided well needed services with the caring hearts of employees.”

Description
  • Sponsor medical diagnosis and treatment for clients with epilepsy;
  • Determine individual needs of each client;
  • Develop annual Plan of Care;
  • Coordinate and arrange office visits with neurologists, lab and diagnostic tests;
  • Enroll clients and non-clients in Pharmaceutical Patient Assistance Programs;
  • Purchase emergency anti-epileptic medications;
  • Make referrals to services available within the community;
  • Assist clients in overcoming barriers to a better quality of life;
Program Eligibility:
Any resident of Florida who has a confirmed diagnosis of epilepsy or suspected epilepsy based on emergency room visits or other medical facility for treatment of seizures is eligible for the program.
Budget $0.00
Category Diseases, Disorders & Medical Disciplines, General/Other Epilepsy
Population Served Poor,Economically Disadvantaged,Indigent, ,
Short Term Success
Short Term- client’s eligibility and needs are evaluated:
A minimum of 90% of individuals referred to EABB will become clients or be referred to appropriate social service organization. 100% of qualified individuals became clients: 75 individuals became new clients; 1,023 service referral units were recorded.
Long term Success
Long Term- maintain and/or improve seizure control: 
A minimum of 70% of clients maintain, improve or control their seizures. During contract year 2011-2012, 86% of clients reported better seizure control on the Client Satisfaction Survey.
Program Success Monitored By

Annually, the program is monitored by the Department of Health contract manager utilizing the Epilepsy Program site visit and Programmatic Monitoring Tool.

Additionally, EABB utilizes client surveys, Custom Case Manager proprietary data base software, and medical notes to measure client and program success in providing the proper treatment of epilepsy and in meeting contractual requirements and deliverables. 

Examples of Program Success
Out of the 45 program categories rated:
-EABB received 33 fully met requirements,
-12 exceeded requirements,
-zero corrective actions.
Description
  • Provide community education relating to epilepsy;
  • Teach people seizure recognition and first aid;
  • Dispel prejudices and myths relating to epilepsy;
  • Offer programs relating to head injury prevention which could lead to epilepsy;
  • Sponsor support group meetings once a month;
  • Attend community health fairs to promote awareness of epilepsy
  • Distribute free bicycle helmets;

Program Eligibility:
There are no fees for educational programs. Anyone can request an educational program for their school, workplace or community group.

Budget $0.00
Category Diseases, Disorders & Medical Disciplines, General/Other Epilepsy
Population Served At-Risk Populations, Other Named Groups,
Short Term Success
Short Term- A minimum of 70% of clients will increase their knowledge of epilepsy. Based on responses to the Client Satisfaction Survey, 95% of clients indicated their knowledge of epilepsy and seizure disorders had improved.
Long term Success
Long term-Reduce client emergency room visits.
Based on the Client Satisfaction Survey and the Case Manager Data Base (doctor, hospital and emergency room reports), client visits to emergency rooms declined by 70% during contract year 2011-2012.

Program Success Monitored By

Annually, the program is monitored by the Department of Health contract manager utilizing the Epilepsy Program site visit and Programmatic Monitoring Tool.

Additionally, EABB utilizes presentation evaluations to determine effectiveness of each educational presentation. 

Examples of Program Success

Annually, the program is monitored by the Department of Health contract manager utilizing the Epilepsy Program site visit and Programmatic Monitoring Tool.

Additionally, EABB utilizes presentation evaluations to determine effectiveness of each educational presentation.

Examples:

EABB is required to conduct 68 group presentations and 56 awareness activities. For the past contract year, 88 group presentations were conducted and 103 awareness activities had been completed.

Program Comments
CEO Statement/Executive Director/Board Comments

EABB contracts with Florida’s Department of Health to provide epilepsy services throughout a 14 county territory in North Florida. For the contract year that ended in June 2012, EABB exceeded all contractual requirements and deliverables.

The minimum number of clients served increased by 25%. Each client received a plan of care exceeding the minimum requirement by 20%. The number of clients reporting improved seizure control exceeded contractual deliverables by over 17%.

Educational programs exceeded the contractual requirement by 30% and epilepsy awareness activities exceeded the contractual requirement by 68%.

The following is the summary of observations and findings from our most recent contract monitoring site visit: “At the conclusion of the site visit, there are no corrective actions required at this time. It should be noted that during the site visit, all individuals were cooperative, knowledgeable and appeared to be dedicated and passionate about serving clients and providing services and activities to Floridians with epilepsy.”

EABB is a certified United Way partner for the United Way of the Big Bend and for the United Way of Northwest Florida. One hundred percent of all grant monies received from these agencies go directly into client services.

In the 2011/2012 Award Summary, the Citizen’s Review Team offered the following comments:
1. Good use of limited resources and staff;
2. Agency does a good job of partnering with other agencies to address the needs of their clients;
3. The team appreciates the E.D.’s focus on incorporating cost savings measures in the operation of the agency. This approach is reflected in the agency’s extremely low administrative expense rate of 4.28%
4. A great job of providing measurable outcomes;

Board Chair
Board Chair Mr. Jason Lammert
Company Affiliation Florida State University
Term Sept 2012 to Sept 2015
Email jlammert@admin.fsu.edu
Board Co-Chair
Board CoChair Mr. James Bailey Jr
Company Affiliation Tyndall AFB
Term Jan 2013 to Jan 2016
Email James.bailey.27.ctr@us.af.mil
Board Members
NameAffiliation
James Bailey JrCommunity Volunteer
Bobbie Jo Finer Retired
Mark Fistos attorney
Merry Ann Frisby Retired
Chris Kraft Kraft Nissan
Jason Lammert Florida State University
Jennifer Mauck Florida State University
Niki Pocock has epilepsy
Bob Prather Florida Bar
Liz Shawen Moore Consulting
Kayatta Williams Adjudicator Unemployment Claims
Felicia Williams-Elliott State of Florida
Gee Wilson Champion Chevrolet
Marthine Woodward Retired
Board Demographics - Ethnicity
African American/Black 3
Asian American/Pacific Islander 0
Caucasian 11
Hispanic/Latino 0
Native American/American Indian 0
Other 0 0
Board Demographics - Gender
Male 5
Female 9
Unspecified 0
Governance
Board Term Lengths 3
Board Term Limits 0
Board Meeting Attendance % 71%
Written Board Selection Criteria? No
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 82%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 4
Risk Management Provisions
Commercial General Liability and D and O and Umbrella or Excess and Automobile and Professional
CEO Comments
One of the greatest challenges we face is overcoming the stigma associated with epilepsy.
The stigma impacts each individual diagnosed with epilepsy often in the form of discrimination. Epilepsy is appropriately termed “a hidden health care crisis.” This can hinder fundraising efforts as individuals, due to fear of discrimination, do not want to go public with their disorder. The solution is to continue to provide epilepsy educational presentations that help dispel epilepsy myths and that eliminate the fear and ignorance associated with this disorder.
Indeed, a majority of individuals diagnosed with epilepsy, through the help of proper seizure management, lead full and productive lives. It is those stories we need to continue to emphasize and promote for a better and complete understanding of epilepsy and seizure disorders.
 
A new opportunity in Florida has been the creation of the Florida Epilepsy Alliance.
The Alliance is a collection of four independent epilepsy associations whose total territory covers more than 40% of the state of Florida. The Alliance helps connect individuals to long term services, programs and support through a collaborative effort with the medical community and non-profit agencies on a local level.
 
What we do works. More than 90% of clients receiving services from the Alliance for more than 12 months report improved seizure control. By offering services and support to reduce and control seizures and address the emotional challenges and problems faced by those with epilepsy, the Alliance provides assistance and guidance so that people can remain functioning and contributing members of society.
Executive Director/CEO
Executive Director Mandy Bianchi
Term Start Oct 2013
Email mandy@eabb.org
Former CEOs
NameTerm
Lynda Kinard Mar 2004 - Dec 2007
John Woodward Jan 1991 - Mar 2004
Staff
Full Time Staff 3
Part Time Staff 2
Volunteers 30
Contractors 0
Retention Rate 100%
Formal Evaluations
CEO Formal Evaluation No
CEO/Executive Formal Evaluation Frequency N/A
Senior Management Formal Evaluation N/A
Senior Management Formal Evaluation Frequency N/A
NonManagement Formal Evaluation Yes
Non Management Formal Evaluation Frequency Annually
Plans & Policies
Organization has a Fundraising Plan? Yes
Organization has a Strategic Plan? Yes
Years Strategic Plan Considers 1
Date Strategic Plan Adopted Jan 2013
Management Succession Plan? No
Organization Policy and Procedures Yes
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
Collaborations
Through collaborative arrangements with the local health community– neurological clinics/neurologists, hospital/emergency room personnel, the Florida Department of Health, the Florida Epilepsy Alliance, the Neighborhood Health Services, the Bond Community Health Services, family practice doctors, and the county (14) health departments – potential clients are both identified/diagnosed and recruited.
Fiscal Year
Fiscal Year Start Oct 01 2013
Fiscal Year End Sept 30 2014
Projected Revenue $250,950.00
Projected Expenses $250,950.00
Endowment Value $7,211.00
Spending Policy Percentage
Percentage (if selected) 4%
Audit or In-House Financial Documents
IRS Letter of Dtermination
Detailed Financials
 
 
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201320122011
Foundation and
Corporation Contributions
$0$0$0
Government Contributions$208,096$209,758$203,578
Federal$0$0$0
State$0$0$203,578
Local$0$0$0
Unspecified$208,096$209,758$0
Individual Contributions$30,173$31,186$7,718
$0$0$25,000
$0$0$0
Investment Income, Net of Losses$128$155$231
Membership Dues$300$460$380
Special Events$4,903$12,491$1,912
Revenue In-Kind$88,918$91,617$84,173
Other$0$0$0
Expense Allocation
Fiscal Year201320122011
Program Expense$313,557$304,992$289,448
Administration Expense$9,128$21,162$11,517
Fundraising Expense$0$0$639
Payments to Affiliates$4,000$1,800$0
Total Revenue/Total Expenses1.021.051.07
Program Expense/Total Expenses96%93%96%
Fundraising Expense/Contributed Revenue0%0%0%
Assets and Liabilities
Fiscal Year201320122011
Total Assets$305,201$295,890$276,985
Current Assets$289,916$292,340$272,811
Long-Term Liabilities$0$0$0
Current Liabilities$8,558$5,751$5,536
Total Net Assets$296,643$290,139$271,449
Short Term Solvency
Fiscal Year201320122011
Current Ratio: Current Assets/Current Liabilities33.8850.8349.28
Long Term Solvency
Fiscal Year201320122011
Long-Term Liabilities/Total Assets0%0%0%
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years? No
Foundation Comments
  • Financial figures were taken primarily from the audits and supplemented with detail from the 990s.
  • Contributions from foundations and corporations are included with total for individuals, as they are not separated in the audit or 990.
  • Top 3 funding sources are not reflected above as they are not indicated in the audit or 990.
  • Has an Endowment at the Community Foundation.
Additional Documents
State Charitable Solicitations Permit
View
Nonprofit Epilepsy Association of the Big Bend, Inc.
Address 1215 Lee Ave, Ste M4
Tallahassee, FL 32303
Primary Phone 850 222-1777
Donate with a credit card http://www.eabb.org
Donate to Endowment Fund at Community Foundation http://www.cfnf.org/index.cfm?p=ways-to-give
Contact Email mandy@eabb.org
CEO/Executive Director Mandy Bianchi
Board Chair Mr. Jason Lammert
Board Chair Company Affiliation Florida State University
Year of Incorporation 1989
Former Names
Epilepsy Foundation of the Big Bend